health care reform

I am somewhat behind on this, but the 12th Chronic Babe blog carnival is up for your browsing pleasure. The topic this time was health care reform and our thoughts on it.

Here are some of my favourite responses:

There are a ton of other great posts over there, so get to reading!

30 things

I did this last year, too, and it was the catalyst that started me blogging more about my chronic illness. I figured it would be interesting to do it again and see what has changed. It’s also a great precursor to Invisible Illness Week, which starts tomorrow.

1. The illness I live with is: psoriasis, psoriatic arthritis, migraines
2. I was diagnosed with it in the year: 2000 for psoriasis and 2005 and again in 2009 for psoriatic arthritis.
3. But I had symptoms since: 1999 and 2004.
4. The biggest adjustment I’ve had to make is: being OK with the fact that I can’t do everything I used to.
5. Most people assume: that I’m not sick at all.
6. The hardest part about mornings are: how stiff, exhausted and sore I feel.
7. My favorite medical TV show is: Scrubs.
8. A gadget I couldn’t live without is: my iPod to pass away long hours in waiting and infusion rooms.
9. The hardest part about nights are: how hard it is to fall asleep and stay asleep.
10. Each day I take __ pills & vitamins. (No comments, please) 23 plus a weekly injection
11. Regarding alternative treatments I: am willing to add them to my regimen, but they’re part of an approach that also includes conventional medicine.
12. If I had to choose between an invisible illness or visible I would choose: I’m not sure. There are benefits and drawbacks to each.
13. Regarding working and career: I work. It makes me feel normal. I hope I can continue working for as long as possible.
14. People would be surprised to know: how much pain I’m in every day. My tolerance for such things have gone up.
15. The hardest thing to accept about my new reality has been: that there are consequences for everything. Every activity — even small ones, like blow drying my hair — take something out of me. I have to decide what’s worth it, what’s essential and what can be left for another day.
16. Something I never thought I could do with my illness that I did was: teach Sunday school. Well, I’m trying that this year, so I guess we’ll see how it goes.
17. The commercials about my illness: are non-existant. And the ones I see for immuno-arthritis always show older people.
18. Something I really miss doing since I was diagnosed is: being able to pack my days full and not worry about how I’ll be feeling tomorrow.
19. It was really hard to have to give up: the freedom to do whatever, to not think of my energy as a finite resource.
20. A new hobby I have taken up since my diagnosis is: jewelry making.
21. If I could have one day of feeling normal again, I would: dance, go horseback riding, take my dog on a long walk, read all night, spend time doing things my husband wanted to do.
22. My illness has taught me: the value of patience.
23. Want to know a secret? One thing people say that gets under my skin is: “Arthritis? Oh, my grandma has that, and she’s fine.”
24. But I love it when people: don’t treat me like an invalid when they find out I’m sick.
25. My favorite motto, scripture, quote that gets me through tough times is: God knows our situation; He will not judge us as if we had no difficulties to overcome. What matters is the sincerity and perseverance of our will to overcome them. — C.S. Lewis
26. When someone is diagnosed I’d like to tell them: grieve. It is essential. Grieve for who you used to be, who you thought you would become, your lost dreams, your health. Then, get on with it.
27. Something that has surprised me about living with an illness is: how strong I am.
28. The nicest thing someone did for me when I wasn’t feeling well was: marry me anyway.
29. I’m involved with Invisible Illness Week because: invisible illness is only invisible for as long as we don’t put a face to it.
30. The fact that you read this list makes me feel: content.